Motor Neurone Disease (MND) is a progressive terminal disease where the neurones (nerve cells) which control the muscles, degenerate and die. This in affect leaves the person unable to walk, speak, swallow and breathe. Average life expectancy is 27 months.
As with numerous other diseases, illnesses and conditions, further research is needed into treatment, care, support and understanding MND better. Hence, the set-up of the non-for-profit organisation, MND and ME Foundation.
I have been a supporter of the MND and Me Foundation since 2013, when my running group PCRG raised over $28,000 during our Gold Coast Airport Marathon training campaign. During that time I met Scott Sullivan, a down-to-earth, family man wanting to make a difference. Scott had been diagnosed with MND in 2010 at the age of 38 years, and formed this foundation to raise awareness and funds for research. Scott visited our group a number of times updating us and thanking us for our support. With each visit you could visibly see the body deterioriating and wearing down, but his mind and spirit always sparkled. Scott passed away in April 2014.
There are many ways to show our support and give some of our vitality and energy where we believe needs it most. We can run marathons, do boot camps, give and raise monies, hold sausage sizzles, attend meetings, volunteer our services, learn more and share our knowledge, or simply listen and be compassionate to those around you. In each way we are lending our support to our greater community and the world we live in.
New York City Marathon
In just a few days, a 43 stronghold group of men and women, who are also passing on Scott’s message will be running the New York City Marathon. They have raised almost $200,000 for MND and trained tirelessly to make the New York stage.
All these men and women are spreading a message, supporting each other and about to have an experience of a lifetime.
I send my best wishes to all my MND friends and fellow runners. I hope you have a great race, and most of all soak up all the support and encouragement from afar and along the course. We shall be with you every step of the way.